The Velcade Three

The Velcade Three

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One year on since NICE recommended Velcade at 1st relapse on the NHS ... What's happened?

3rd November 2008

In the past year we have been busy advising and supporting Myeloma sufferers and their families with regard to accessing Velcade. Our support is not just confined to the UK. We are in contact with Myeloma sufferers world wide.

10 Months on from NICE guidance on Velcade.

27th August 2008

In May of this year we wrote to Myeloma UK, Cancer Charity Cancerbackup and the drug company, Ortho Biotech which makes Velcade.

Thank you for visiting our website

Jacky Pickles, Janice Wrigglesworth and Marie Morton are three women from Yorkshire who suffer from multiple myeloma - a type of blood cancer. Our fight for access to the life prolonging drug Velcade has been widely reported in the media and we became known as “The Velcade Three”.

The Velcade Three are campaigning to make the drug Velcade available to sufferers all over the country

The Velcade Three are campaigning to make the drug Velcade available to multiple myeloma sufferers all over the country. We would like to hear from any myeloma sufferers out there who may be entitled to legal aid and will need Velcade or those who have been refused this drug - please get in touch.

We would love to hear from people who have had Velcade and are in plateau. How long post-treatment are you? Please do contact us for a chat.

A short survey for multiple myeloma sufferers

It is now six months since NICE Guidance was issued allowing multiple myeloma patients access to Velcade on the National Health Service. We would like to know how many patients have benefited from this guidance and have received Velcade.

We would be very grateful if you could complete this short questionnaire – individual responses will remain anonymous.

Once we have received enough responses, we will share the results on our site and with the media.

Download the questionnaire here.

Return the completed form via email or post to; The Velcade Three, c/o 18 Laycock Lane, Laycock, Keighley, West Yorkshire, BD22 0PN.

Our petition to the prime minister

The Velcade Three have been successful in arranging a petition which is available on the 10 Downing Street website. We would very much appreciate you taking a few moments of your time to read and sign this petition and encourage friends and family to follow your example. In doing so you can help both patients and carers achieve our aim of gaining recognition and treatment of this devastating disease.

http://petitions.pm.gov.uk/myeloma/