The Velcade Three

The Velcade Three

Latest news »

Minutes from Meeting with Ann Keen (Health Minister) 20/07/09

30th September 2008

Last July (20/07/09) I (Jacky), met with Ann Keen to discuss a few outstanding issues that The Velcade Three had and to share some ideas that we felt may aid smoother transition when Consultants are applying for Velcade for Myeloma sufferers.

Notes from Health Minister Ann Keen’s meeting with Ms Jacky Pickles

30th September 2008

Ms Pickles began the meeting by stating that she had previously met with Sir Mike Rawlins, Chairman of the National Institute for Health and Clinical Excellence (NICE) and Professor Mike Richards, National Cancer Director.

Events

Upcoming events

The Britain Against Cancer Conference in London

2nd December 2008

Janice and Jacky have attended this conference in 2006 and 2007.

Sadly, Janice is not well enough to attend this year - although Jacky will be going.

It is a chance to get your views heard in a political arena. It brings together patients, health professionals and policy-makers to look at the impact of public policy on cancer services and research.

Download details of the conference.

Please consider attending. The bigger the voice regarding treatment for Myeloma Sufferers, the more we may get heard.

Leeds Myeloma Support Group Christmas Lunch 2008.

12th December 2008

The Myeloma Support Group Christmas Lunch this year will be held on Friday 12th December 2008 at 12.30 pm at the Thackray Museum Leeds.

Jacky and Janice (health permitting) are going to attend the Xmas Lunch.  

A deposit of £5.00 has to be paid by Friday 28th November which is also the day of the next Leeds support group meeting.

Anyone wanting to book places for the Lunch can contact Rita Rumsey (Myeloma support group leader - rita.rumsey@ntlworld.com) or e-mail The Velcade Three at: myeloma@velcadethree.co.uk.

Recent events

York Myeloma UK Info Day

21st June 2008

The Velcade Three will be attending the York Myeloma UK Info Day to be held on June 21st. We always find these days very informative and helpful and are looking forward to meeting up with old friends and chatting to other patients and carers.

60s weekend at Haworth

22nd June 2008

On Saturday and Sunday June 21st and 22nd a 60s weekend is being held at Haworth, nr. Keighley, with lots of 60s music and dancing, fashion, various stalls, face painting etc. One of the main objectives of the weekend is to raise money for both Manorlands, our local hospice and Myeloma UK. The Velcade Three have been invited to join in the day on Sunday by having a stall there to give out information and chat to anyone who may have questions or concerns about Multiple Myeloma. If you are in the area please come along and say hello, join in and soak up the 60s atmosphere and help make the weekend a great success.

Meeting with Professor Mike Richards CBE, National Clinical Director for Cancer

26th February 2008

The Department of Health's Professor Mike Richards has responded to our letter which we sent last November requesting a meeting with him. The meeting is set to take place in London on February 26th.

All three of us are aiming to attend, health permitting. In his position as the governments National Cancer Director we hope to discuss and clarify issues that we still have concerning Velcade and future aims regarding our campaign. If you have any issues you want us to raise regarding Velcade on the NHS, please contact us and we will try and incorporate them into the meeting.