The Velcade Three

The Velcade Three

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Minutes from Meeting with Ann Keen (Health Minister) 20/07/09

30th September 2008

Last July (20/07/09) I (Jacky), met with Ann Keen to discuss a few outstanding issues that The Velcade Three had and to share some ideas that we felt may aid smoother transition when Consultants are applying for Velcade for Myeloma sufferers.

Notes from Health Minister Ann Keen’s meeting with Ms Jacky Pickles

30th September 2008

Ms Pickles began the meeting by stating that she had previously met with Sir Mike Rawlins, Chairman of the National Institute for Health and Clinical Excellence (NICE) and Professor Mike Richards, National Cancer Director.

Parliament praise for Velcade Three

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Telegraph & Argus

Campaigning cancer patients the Velcade Three have been recognised in Westminster for the role they are playing in securing a life-extending drug.

Jackie Pickles and Marie Morton, both of Keighley, and Janice Wigglesworth, of Cowling, near Keighley, are commended in a Commons motion.

Keighley MP Ann Cryer yesterday tabled the motion weeks after the women, who all suffer from myeloma, were told that the National Institute for Clinical Excellence (NICE) had made a preliminary recommendation to give Velcade approval - after previously saying, No.' It could be available to cancer sufferers within weeks.

Mrs Cryer's motion welcomes the NICE recommendation but urges that a full decision be taken.

The women were dubbed the Velcade Three for their high-profile battle for all sufferers to receive the drug. They all have multiple myeloma, a form of bone marrow cancer. Velcade cannot cure the cancer but a course of treatment, costing around £33,000, can extend a patient's life.

Last year the three challenged then Health Secretary Patricia Hewitt at the Labour party conference and demanded she step in and make the drug available.

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