The Velcade Three
Myeloma sufferers stories
Read some personal stories about the Velcade Three and other people who suffer from Multiple Myeloma. Each person has a personal documents section where they can hold documents and share their thoughts with other myeloma sufferers.
If you suffer from myeloma and would like to be included on this page we would love for you to get in touch.
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Jacky PicklesI am a Midwifery Sister at Bradford Royal Infirmary. I was diagnosed with Multiple Myeloma at the age of 39, back in January 2002. After having C-VAMP and a Stem Cell Transplant in 2002 and Thalidomide in September 2003, I was lucky enough to receive Velcade as part of a clinical trial (PAD Trial) in February 2006. The drug considerably improved my condition after just two and a half cycles. In March this year (2008) I recommenced Velcade / Dexamethasone therapy. The treatment is quite tough going, what with the 45 mile trip twice a week and the unwanted side-effects of the Dexamethasone, but then if the treatment works it will be well worth it. I feel very lucky to be able to revisit Velcade which gave me two years of Plateau Phase and a reasonable good quality of life. My PCT has supported me to revisit Velcade under “exceptional circumstances”. This is my third relapse. With myeloma there is no cure, we, at best hope for a long Plateau Phase, but this drug gives reasonable good quality of life. It is allowing me to live and see the things I want to see. It gives me hope that I will live longer and see my 24-year-old son Sean achieve his goals in life. We have to fight for Velcade treatment, because if we don't who will? |
My Documents |
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Janice WrigglesworthI have been married to John for 38 years, we have three children and two grandchildren. The reason I personally have become involved in this campaign is because I have seen the positive and encouraging change in Jacky post trial following her treatment with Velcade. I was diagnosed with multiple myeloma in March 2002. I received a stem cell transplant in September 2002 and am currently in remission. I know I will need Velcade in the future. Is the answer to uproot ourselves and to move instead to a different postcode, where we understand Velcade is available to all who need it no matter the cost? |
My Documents |
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Marie MortonI have been battling myeloma for seven years. I was introduced to Jacky as a buddy in 2002 after Jacky's diagnosis. I used to work as a driver, but due to the illness I had to retire from my job two years ago. I have so far been treated with high dose chemotherapy, and stem cell transplant in June 2000. I have had two courses of radiotherapy in 1999 and 2004. At present my bloods are fluctuating and my Consultant Haematologist has told me that I may need treatment in the very near future. |
My Documents |
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